Ask Me Anything ALS - Genetic Testing

Ask Me Anything ALS - Genetic Testing focused on why some people get tested and others don’t, the role genetic counselors play, and the good as well as the difficult realities of receiving the results. A genetic counselor sat on this panel.

About ALS
ALS is a disease that attacks cells in the body that control movement. It makes the brain stop talking to the muscles, causing increased paralysis over time. Ultimately, ALS patients become prisoners within their own bodies, unable to eat, breathe, or move on their own. Their mind, however, often remains sharp so they are aware of what’s happening to them.

About I AM ALS
I AM ALS is a patient-led community that provides critical support and resources to patients, caregivers and loved ones. We empower advocates to raise mainstream awareness and lead the revolution against ALS in driving the development of cures. Find out more on their website: https://iamals.org