Living with Hereditary Spastic Paraplegia (HSP)

Описание к видео Living with Hereditary Spastic Paraplegia (HSP)

Hereditary spastic paraplegia (HSP) is a rare genetic disease that impacts neuronal firing capabilities, resulting in a disruption in walking gaits, digestion, cognition, and lifestyles.

While every individual experiences different symptoms, with some severe and others less so, Jason Jones is mostly affected in the lower limbs. This means his walking, posture, balance, strength, and flexibility are all greatly impacted. Because of this, he spends a good portion of his daily life in a wheelchair or using a walking cane.

In this interview, get an insight into what it's like living with HSP, including the struggles, the triumphs, and his daily schedule.

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If you'd like to learn more about HSP, check out this video:    • Hereditary Spastic Paraplegia (HSP): ...  

If you'd like to get in contact with Jason, head to: https://neuroguild.com/about/#jason

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WHAT IS NEURO GUILD?

Neuro Guild is a hub for all who suffer from neurological impairments and disorders (e.g., HSP, motor neuron disease, cerebral palsy, multiple sclerosis, Parkinson’s disease, rheumatoid arthritis, etc.), to train, connect, participate in live events, courses, Q&As, and learn new skills.

If you'd like to learn more, head to: neuroguild.com

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Thanks for watching 😎

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#HSP #neurology #neurologicaldisorders #neurologicalimpairment #disability #disabilitypride

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