See beyond ALS

Just Worldwide Co., Ltd., as a company specializing in medical market research, values the connection with the parties involved. With the consent of patients and their families, we interview and create videos with the aim of understanding the lives of patients while cooperating with various disease communities and groups.

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This time, we have Kazufumi Fukase, a patient with ALS (Amyotrophic Lateral Sclerosis), a nationally designated intractable disease, and his daughter Hisari Fukase.
Due to ALS, the muscles of the limbs, throat, and tongue, as well as the muscles necessary for breathing, have become weaker and weaker, making it difficult for Fukase and Hisari to communicate. We paid attention.
Those who see their exchange for the first time may be surprised, but through this video, you will understand that mouth writing is actually a very rational method.

The exchange between the two is summarized in three videos.
・"Do you know Kuchi-moji? (Short version)"
　   • Do you know ”Kuchi-Moji"? short version  
・"Do you know Kuchi-moji?"
　   • Do you know "Kuchi-Moji"?  
・“See beyond ALS”
　   • See beyond ALS  

Please take a look!

Appearance
Kazufumi Fukase (Former Director, Japan ALS Association)
Japan Association of Intractable Diseases and Diseases, Managing Director of Hokkaido Intractable Diseases Association, Representative Director of Tsukushi Home-visit Nursing Care Co., Ltd.)
Hisari Fukase

Japan ALS Association https://alsjapan.org/
Japan Association of Intractable Diseases and Diseases https://nanbyo.jp/
Hokkaido Intractable Diseases Federation https://www.do-nanren.org/
Tsukushi Home Care Service Co., Ltd. http://hp.kaipoke.biz/vee/

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#als #mouth character #muscular atrophy sclerosis #Japan ALS Association #Japan incurable disease group council